Reply To: Undiagnosed – unusual deterioration course

Carla, It seems the only valid test for GBS/CIDP you had was the NCV, and the accuracy of results is subject to the experience of the analyst. There are other tests that should be done to confirm or deny the disease. Please see the following publication for an overview of the diagnostic tests involved:
http://30g7el1b4b1n28kgpr414nuu-wpengine.netdna-ssl.com/wp-content/uploads/2012/01/OverviewENG.pdf

If CIDP is confirmed from testing, I recommend 3-4 days of PE followed by a week of IVIg. But these are expensive treatments and your insurance will likely have to be on-board with the treatments. Too many insurance companies are denying the proven (yet expensive) treatments in favor of their profitability over our quality of life!