Reply To: New diagnosis, 23 month daughter in hospital, did not respond to IVIG

February 6, 2017 at 12:05 am

I don’t have any first hand experience with a child having the disease, but I offer you these publications that may be helpful:

This one is more general and can give you a really great understanding about what to expect and what to do:

This one is more technical and can offer your doctor some ideas to better help him/her help your daughter:

Your daughter is young and can overcome this disease more easily than some of us older folks. I hope that that, coupled with the info in the cited publications, will give you and her an advantage to overcome this disease quickly.