Reply To: New diagnosis, 23 month daughter in hospital, did not respond to IVIG
February 6, 2017 at 12:05 am
I don’t have any first hand experience with a child having the disease, but I offer you these publications that may be helpful:
This one is more general and can give you a really great understanding about what to expect and what to do:
http://www.gbs-cidp.org/wp-content/uploads/2012/01/CareForChild.pdf
This one is more technical and can offer your doctor some ideas to better help him/her help your daughter:
http://www.gbs-cidp.org/wp-content/uploads/2013/02/Childhood-CIDP-2013.pdf
Your daughter is young and can overcome this disease more easily than some of us older folks. I hope that that, coupled with the info in the cited publications, will give you and her an advantage to overcome this disease quickly.