Reply To: AMAN Varient 7 weeks on vent

Hi Ron

We are very much alike. I was diagnosed it back in May 2014. I spent two months bouncing between hospitals and acute rehab and then another two months in subacute rehab. I came home when I was only a one person transfer between the bed and the wheelchair. Been in a few months I was using a walker and then a cane and two weeks ago I had no problem walking in the New York City Women’s March. It was only a mile, but I was on my feet for about eight hours. But round doorknobs and pencils are useless to me. Some places the damage was to the axons and in others it was the sheeths which are mostly healed by now