Reply To: Recently diagnosed with CIDP

I did what GH said and that was to get off, and stay off of pain meds, particularly the narcotics based and all the mood altering psychotropics, specifically gababentin, effexor, elavil, neurontin, paxil, wellbutrin and others of that ilk. Over the years the doctors offered me all of those.

No doubt others could share their positive experiences with these for nerve pain management. It’s personal with me. I don’t like the side effects.

I also took an immune suppressant. I stopped taking it almost 6 years ago. Here again, it’s only my opinion, that the immune suppressant has so far permanently suppressed my immune system.