Reply To: A lucky story GBS/MF mixed

January 10, 2017 at 9:47 pm

Yes David, you hit on the key. Early treatment prevents deep nerve fiber damage. Meylin can usually regenerate, axonal damage is another story.

Don’t exercise beyond fatigue, this can place too much stress on already damaged fibers, causing a little more damage or hamper nerve fiber regeneration. Take it slow, let the body do its repair work. Get some baseline strength tests and ROM tests. Then you will be able to measure improvement over time.

My diagnosis was similar to yours GBS/CIDP/MFS. I’m still wheelchair bound due to too much axonal damage. If I had only started PE right away, I believe I would still be walking today.

Best of luck with your recovery!