Reply To: Patient stories

October 31, 2016 at 1:17 pm

Hi there. I have been looking all over this site for someone like me and it’s quite clear we may all suffer from the same disease but all travel a separate path. I was diagnosed with GBS last February but when my symptoms did not improve I was diagnosed with CIDP in June starting IVIG tx every other week since the start of August. I am struggling to find signs of improvement and mortified to continue to see signs of decline present as well as new problems arise. I am also on prednisone 30mg daily. Starting solumedrol 250mg as premeds along with Tylenol and benadryl for this weeks infusion. I follow up with my neurologist at U of M in early December.