Reply To: GBS diagnosis uncertain ? Help please

August 2, 2016 at 3:04 pm

Although very difficult to offer diagnosis advice from the limited info you posted, your symptoms bear a resemblance to those of Miller Fisher Syndrome (MFS). Perhaps it would be worthwhile spending time to rule that in or out. Here are some info links for MFS:
http://30g7el1b4b1n28kgpr414nuu.wpengine.netdna-cdn.com/wp-content/uploads/2012/01/MillerFisherSyndrome.pdf
http://www.ninds.nih.gov/disorders/miller_fisher/miller_fisher.htm

In addition, the forums here contain a great deal of info about MFS and you can do a keyword search to read more.

Here is a technical publication that may help you and your doctors determine what you have and treat it:
http://30g7el1b4b1n28kgpr414nuu.wpengine.netdna-cdn.com/wp-content/uploads/2013/02/AcuteCareICU13.pdf

Good luck