Reply To: Will IVIG work?
July 26, 2016 at 12:17 am
I also had a poor response to IvIg. I had a five-day loading dose, which seemed to slow the progress, but I continued getting weaker right after. Then I had another loading dose with similar poor results. Soon after that I was in nearly complete paralysis, at which time my treatment was switched to plasma exchange (PE). After nine PE treatments I started to improve, and was also treated with prednizone and CellCept. After five years I am nearly normal and off all treatments.
Patients do not all respond in the same way. Your neurologist must find the treatment which works best for you. I am not recommending treatment, but perhaps you should discuss PE with your neurologist.