Reply To: Axonal Guillan Barre (AMAN)

June 8, 2016 at 3:32 pm

My ASMAN diagnosis was when I had my EMG and an MRI back in Oct. I spent 85 days at the University of Columbia hospital. I was totally paralyzed from the top of my head to my tippy toes. I spent most of the time in a medically induced coma.I had to have an emergency trach, feeding tube and catheter. I really didn’t start any therapy until Aug/Sep of 2014. I did go to RUSK Rehabilitation Center in Columbia and the worked me hard 5 days a week, sometimes 6. I was finally able to come home Feb.2 2015. Since then I have done my own therapy at home. I now only see my nuerologist and physical rehab dr’s once year. I onl have to see the neurosurgeon if my spinal stenosis in my neck gets worse. So I’m not doing too bad