Reply To: Axonal Guillan Barre (AMAN)

June 8, 2016 at 2:35 pm

Thank you so much, Jennifer! I am very, VERY grateful for the time you took to tell your story. I will call Dr. Aggarwhal now – I live downtown so he’s right in the neighborhood. And, I wish you the very best with your health. Your story, like so many others on this site is an inspiration to people like me who are determined to — at the very least get a diagnosis! And, even more it gives me hope that I can get treatment. You are a pioneer for sure! Even though IVIG was at first thought to be a medical mistake you opened a path to stopping progression of “this horrible disease” as only someone who suffers from AMAN could understand.

Thank you again … I’ll follow up with you and others on the site on my progress (numb and tingling fingers are crossed!).

Renee