Reply To: Negative Spinal Tap-Still CIDP?

Yes, you should seek diagnosis from a Center of Excellence! You have three choices within a 300-400 mile radius of Chicago (Detroit, Rochester, and Columbus).

Acute Motor Axonal Neuropathy (AMAN) is a variant of Guillain-Barré Syndrome (GBS). It is a rare variant but treatment options are available should you have that condition. Information about AMAN can be found by performing a keyword search on the forums here. If that were what you have, it would be better to post further comments under that forum thread. You can read more about AMAN here:
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3939842
https://www.hitpages.com/doc/6563064899960832/1#pageTop
https://forum.gbs-cidp.org/topic/axonal-guillan-barre-aman

Other GBS variants are described here:
http://www.gbs-cidp.org/wp-content/uploads/2013/02/AcuteCareICU13.pdf