Reply To: Negative Spinal Tap-Still CIDP?
The GBS/CIDP Foundation may be able to help you. Please fill out a support request here:
Please read about the diagnostic criteria used to determine CIDP in the following document, you may find it useful in helping you fight the denial:
Have they denied treatment with Plasma Exchange too? You may also want to look into programs offered by the IVIg manufactures such as CS Behring here:
I know what you are going through, I fought a “not a medical necessity” denial from Blue Cross for nearly a year before finally prevailing. Good luck!