Reply To: Negative Spinal Tap-Still CIDP?

The GBS/CIDP Foundation may be able to help you. Please fill out a support request here:
http://www.gbs-cidp.org/get-support/denied-ivig-treatments

Please read about the diagnostic criteria used to determine CIDP in the following document, you may find it useful in helping you fight the denial:
http://30g7el1b4b1n28kgpr414nuu.wpengine.netdna-cdn.com/wp-content/uploads/2012/01/Treatment-of-CIDP-by-Robertson-Donofrio1.pdf

Have they denied treatment with Plasma Exchange too? You may also want to look into programs offered by the IVIg manufactures such as CS Behring here:
http://30g7el1b4b1n28kgpr414nuu.wpengine.netdna-cdn.com/wp-content/uploads/2013/12/The-PATH-Study-1.pdf

I know what you are going through, I fought a “not a medical necessity” denial from Blue Cross for nearly a year before finally prevailing. Good luck!