Reply To: what am I facing?

April 24, 2016 at 3:53 am

I was diagnosed with CIDP in Aug 2012 I don’t think I’ve ever been in remission. I have nerve pain constantly in my lower legs (coldness blue toes sometimes) numb feet and weakness in my hands and feet. Some days my body moves better than other days I do experience aching hips and lower back pain. Does remission mean the symptoms totally go away? And do patients stay on treatment in remission? I exercise and enjoy life with my 3 sons and Jay Mountain Biking, walking our dog, swimming and yoga. I do have regular rests as part of my day. Im I. 55g Ocyogam each 3 weeks methotrexate 20mg and Predisone 5mg. My strength has improved since beginning steroids and Methotrexate last July. Ali