Reply To: Scared at 82
Thank you both for your stories and help. I have shared your messages with my mom and she was so relieved to know that there is hope. We have requested a neuro referral and will go from there. Tomorrow a team is taking my mom home to assess her ability to be on her own. This means she will have all the equipment and homecare help required to function at home with physio appointments nearby. The next day we are meeting with the hospital team to discuss everything and if they feel she is ready, we are going to appeal the decision. She’s not ready. She cannot hold a phone to call 911 if something happened. Keeping patients in hospital is big money and the urgency to get sick people discharged asap all boils down to saving money.
You are so right about GBS being uncommon, not rare. It amazes me how many people know someone who has had it.
Your advice is very much appreciated. Thank you for taking the time to write me.
We live just outside Vancouver, British Columbia.