Reply To: Sensory CIDP?

December 5, 2015 at 1:47 pm

Hey Bill! Thanks for tthe speedy reply. (A large part of my problem is I’m all alone, stuck in a tiny apt. I’m so lonesome I could frikkiN’ SCREAM!) I’m in the boondocks of western NY and when I got DX’d my primary DR said “what is that? I’ve never heard of it.” and then proceeded to give my the you have no hope lecture.

What is EC and WC? I’m wortking as hard as I can all by myself and do a little yoga (I used to teach yoga and train horses….HAH!) And your advice to think about other stuff is spot on. This is such an ‘in your face’ disease but you make it worse by concentrating on it. I have a smart tv in my bedroom and I watch a lot of positive stuff and then go to sleep w/Willie Nelson.

Does your pain get worse at night?

My neurologist said set small goals, but like what? What types of goals are you working on?