Reply To: AMAN Varient 7 weeks on vent

November 3, 2015 at 8:47 pm

It is definitely not a hoax, but this website unfortunately has few regular contributers. There used to be more, but when the site was redesigned, a lot of them left in a snit. Most of them weren’t that committed to the mission of the organization anyway, but just wanted a place to chat. I think they went to FB, but I’ve never been interested in that.

One problem is that these disorders are rare and there are many variants. So, for example, while I was completely paralyzed for a time I don’t have AMAN and don’t know anything about it, and I was never on a ventilator.