Reply To: Sensory CIDP?

October 28, 2015 at 3:13 pm

“Sensory” CIDP refers to the symptoms associated with the syndrome. In other words, tingling and numbness of hands and feet are sensory symptoms of Peripheral Neuropathies (PN) like CIDP.

The treatments for PN vary by exact condition and the individual’s tolerance to the treatments. IVIg is considered the top treatment for most patients. Plasma Exchange (PE) is another top treatment. IVIg stops the immune system from producing more cells that attack self. PE removes the attacking cells. Some, like me, believe the best treatment is 2-4 days of PE then switching to IVIg.

CIDP attacks Myelin, the insulation surrounding the nerves. It can also, if left unchecked for long periods of time, attack the Axons themselves. The body can repair some Myelin damage, but it is very slow and can take years. It is much more difficult for the body to repair Axonal damage.

There are some newer treatments (Rituxan, Stem Cell Transplant, etc) that are providing hope for some of us.

Here is a good article about CIDP from one of the leading researchers and authorities, Dr Richard Lewis: