Reply To: Searching for answers – 10yr old son
October 19, 2015 at 11:03 pm
Hi there. My daughter was diagnosed with CIDP at 4 years old. I totally understand your concerns & frustrations. Waiting for dr appts when something strange is happening to your child is maddening.
The tests I would recommend are: MRI with and without contrast of the brain, spine & neck, EMG of BOTH arms & legs, spinal tap to check protein levels, and a CBC.
Does your son complain of fatigue or is it weakness & neuropathy?
Kelly