Reply To: After living with GBS for 5 years, I just found this site

October 1, 2015 at 2:44 pm

It’s crazy that it took two months for a diagnosis. A typical case of ascending paralysis can be diagnosed as GBS in a day. The active phase of GBS lasts only a few weeks, so if you had GBS, what you have now are residuals from the nerve damage. Treatment to minimize nerve damage must be started early to be effective.

If you have CIDP, regular IvIg treatments can help.

Do you have a neurologist now?