Reply To: I don't know what to do.
Have you read through the following publications:
After reading the publications and you believe you may have CIDP/MFS or one of the variants, you should seek a neurologist who specializes in these diseases.
What specific type of nerve test did they perform (EMG, NCV, NCS)? Did they do a spinal tap and CSF test? Have you been treated with IVIg/SCIg or Plasma Exchange? What city do you live in? Are you near a Center of Excellence? Maybe we can help steer you to a good specialist in your area.