Reply To: Help! Hubby has GBS symptoms post infection. Does this sound like GBS?

August 31, 2015 at 12:41 am

I had no pain..still don’t, but have heard of others that had. Nothing came one was in a hurry except me.I knew I was in trouble. Every day I feared waking up and being paralyzed.5 month wait before I saw a neuromuscular specialist. My GP was the one who started me on prednisone 7 months ago.the neurologist I was seeing wouldn’t treat without a definite diagnose..said it was over their heads..then 5 months wait..thank god she started treatment.I can only imagine how much damage could have happen in 7 months. Just started imuran and they are starting the insurance paperwork to try to get me ivig.. sounds very likely uour husband has Cidp.I felt like I was in a nightmare. I’m sure your husband feels the same..Finding a good doctor is the hardest part.