Reply To: No improvement GBS after a year? HELP!!!!!!

August 28, 2015 at 10:05 am

Engaging in P/T and O/T is really, really important.

As JK said, do it on your own. I had initial physio and have been doing it on my own ever since. It has worked really well but plateaus can last for months. Also, improvement can be sooo slowly incremental that you don’t notice that you’ve progressed. Someone who doesn’t see you regularly may remark about how much better you seem and you hadn’t even noticed.

Sounds like you’re still pretty restricted but try to do as many normal things as normally as you can. That has helped me beyond measure. It’s also good for your morale, once you find things easier to do.

Re $$$…again, same as JK said. I’m in Canada, we have disability and I have a friend in Michigan who also got it stateside. Have you applied yet? You certainly sound eligible.