Reply To: No improvement GBS after a year? HELP!!!!!!
Personally, I always felt there was too much emphasis put on outside services such as p/t and o/t. Sooner or later, you’ll have to take what they teach you and do it at home.
Therefore, do it (p/t and o/t) on your own at home. Find some on line videos, go the library get a book, you get the idea. Live in the US? Find some county services.
find a way to follow the Doctors’ recommendations. It is of utmost importance to get proper treatment.
Still in the US? apply for Social Security Disability. Absolutely destitute? Apply for state aid. Medicaid or whatever they call it in your area.
After one year- it’s probably not GBS anymore, by definition. Something from Hopkins medicine: “Diagnosis of GBS and CIDP is based on history, clinical examination and supporting laboratory investigations. These include electromyography with nerve conduction studies, blood tests and analysis of spinal fluid. In most instances CIDP requires nerve biopsy for histopathological evaluation.”
go to: http://www.hopkinsmedicine.org/neurology_neurosurgery/centers_clinics/peripheral_nerve/conditions/guillain_barre_and_cidp.html