Reply To: Dealing with family and friends

August 1, 2015 at 11:14 am

Gather as many as you can at one time. Explain that your condition is very similar to ALS. Use Lou Gehrig’s name.

They might start to listen. It’s sad but it is human nature that some people cannot open their minds and hearts to empathize with anyone else. Of course, some do a good job.

Consider how all the IED blasted, limb missing Vets, Agent Orange Vets (on and on) are ignored.

You still look healthy. I’ve gone through this for 45 years. My 2nd wife gets it. No one else, kids included has a clue. they are incapable of grasping it.

Explain again and again. Good luck.