Reply To: Diagnosed with GBS June 5 2014

July 15, 2015 at 7:39 pm

Hi, Jerkbrown. Yes, all your symptoms are very familiar to many of us. I know that my case sounds almost identical to yours.

Try not to stress over the residual symptoms. I left the hospital after 4 1/2 months, on June 12, 2012. It has just been in the last 6 – 9 months that I have become more comfortable. My diaphragm has finally started to loosen so I can breathe better; my worst eye now only has occasional bouts of photo-sensitivity and looking blood red; nerve pain and muscle spasms are at last greatly reduced. Also, my teeth no longer throb on my weak side. 🙂

While I still have some residual paralysis on my right side, I would estimate that I am at least 90% recovered. That includes my memory, speech and critical thinking issues, which are almost back to normal. The same will likely happen for you!

Oh, and don’t you believe that hogwash about not improving after the 3 year mark! I HAVE made progress beyond that time frame and I continue to notice improvements. After a long time, plateaus can last several months and progress is more subtle but it does continue to improve.

I still have ‘days’ but now they are fewer and farther between. Sometimes months apart. Symptoms will flare up a bit when I am especially tired.

So, I know you’re uncomfortable right now but please don’t get discouraged. It does get better.

Sounds like you have a terrific support system! That, in itself, is a wonderful tonic and something everyone needs during recovery. I’m sure they will celebrate your milestones as you continue to improve.

When you’re up to it, you can try reflexology on your feet. I had a couple of sessions. Having the foot muscles massaged and stretched felt wonderful! Loosened them up, even if only temporarily. Same goes for massage therapy (only use a therapist familiar with treating GBS, they’re out there), which can make your muscles feel loosey-goosey fantastic! It can remind you of how you felt before the dreaded GBS hit.

Anyway, hope your recovery moves quickly and smoothly! I’m certain that all your hard work will help you get there.