Reply To: my father is paralysed neck down.
The paralyzation from CIDP can most certainly affect speech. The vocal chords can also be paralyzed, along with the respiratory system.
I don’t want to be the bearer of bad news, but this is a very critical time foe the neurologist to find something to help.
As I advised above, when the standard treatments are not effective, it is time to look at chemo. Rituxan would be first. That targets the B cells. If those are the “sick” cells, the Rituxan eliminates that part of the cell.
If that does not work, them you need to look at targeting the T cells, and that chemo drug starts with a C… I forgot off the top of my head how to spell it, so I am not going to try.
Eventual respiratory failure is responsible for many of the CIDP patients our neurologist has treated (over the past 25 years).
Now is the time to fight for her life; you don’t have much time.