Reply To: New to this…

First! Let me pass the baton of Knowledge to you (and everyone else who reads this forum). The best advice I can give and learned is when faced with a Medical dilemma, go to a large city’s University based Medical Center, it will sace you so much running around with the clueless. You can also get remote 2nd opinions from John Hopkins and possibly Mayo.

With that said, there is a lot of study and research of CIDP. If you search for Medical Clinical Study’s there are quite a few Clinicals, but virtually no real answers. I am familar with Columbia Medical Universtiy in New York City, there is an IVIG and a drug study I am considering. Just don’t give up, and rely more on yourself then the Doctors. Go with your gut for the most part, then hold your breath and go with the best rescommendation multiple doctors come up with.

Good Luck!