Reply To: New to this…

CIDPWhat,

I was diagnosed back in August 2014 with CIDP. In September, I had my first round of IVIG for 5 days, followed by 3 or 4 days in October and November. My neurologist told me that I would receive treatments for 3 months and then take a break to see how things went. I felt a little better after the last treatment, but right around the holidays I felt horrible and I was starting to get pains in my feet that hurt terribly. I called the neurologist and he put me on 300mg of Neurontin to be taken at night and increasing my dosage every week until I reached 900mg. I went to see him after the first of the year and we started my treatments again in January and I just finished up a few weeks ago. I feel a lot better! And, I’m hoping and praying it stays this way. The neurologist told me he expected me to feel better after the second round of IVIG and that it takes time. I felt the same way as you…what does this mean for my future? I remember asking him when I was first diagnosed, “will I end up in a wheelchair or walking with a cane or something…I’m only 32.” He told me that he didn’t have a crystal ball and he wasn’t sure what would happen but he was optimistic that I would feel better. I respected his honesty and I knew deep down that he couldn’t tell me for sure how this would all paly out. Sometimes I get down when I think about the possibilities of what may occur and then I try to remember that at least I’m still mobile and things could be worse. So, I’m wishing you the very best as well as all others that are suffering from this. God Bless.