Reply To: my father is paralysed neck down.
hiba24, So sorry to read this news about your father. I noticed you said “here in the uk cidp is quite rare.” There is a support group in the UK, maybe you know of it.
do not let the ‘gain’ discourage you. It seems to stand for Guillain-Barré Associated Inflammatory Neuropathies
It is certainly discouraging to be in the minority and get the disease, even worse to respond so poorly or not at all. Some studies suggest that some patients still have severe disability (unable to walk) or treatment dependent relapses no matter which treatment regimen they are given.
I hope you find a treatment program that works for your father.