Reply To: Diagnosed with CIDP in August

November 8, 2014 at 12:25 pm

A neurologist who thinks you need to have diabetes to have a neuropathy isn’t the one you want.

IvIg is standard treatment, but isn’t the most effective for everybody who is diagnosed with CIDP. It didn’t do much for me, and when I crashed after two rounds of IvIg I was switched to plasma exchange. I don’t know what the outcome would have been otherwise, but in any case I have made nearly a full recovery.

Physical therapy will do nothing to arrest the progress of CIDP. If the degeneration of nerves can be halted, then the nerves will have a chance to heal and PT will help restore muscle strength.

It is much too soon to get discouraged. You need a neurologist who is experienced with acquired peripheral neuropathies and who will work to find the best treatment for you. You must be patient because there is no quick solution to this disorder.