Reply To: Recently diagnosed with CIDP

October 31, 2014 at 10:20 pm

My husband is on the other side of CIDP. He is older (59 now) but an active guy. Skiing every weekend, paddling during the summer. He was in a rehab facility for 4 months.

The key for him was getting to a neurologist who know what to do. He received high dose IVIG. Started every week, then as he got better, every other week, then every three weeks. He has now been off IVIG for 9 months after receiving it for 3 years. Small price to pay for being able to walk. He is back skiing and doing great. He even walked a half marathon.

We have talked with many people who have recovered from this and you cannot tell they ever had it. Marshall still has some foot issues, but nothing that stops him from doing anything except maybe running.

If you want to talk with him, please reply and we will figure out hot to get in touch. But, #1 thing to do, find a neurologist who knows GBS and CIDP. We had to travel to Seattle to get to someone who know what to do.

Take care.