Reply To: Atypical CIDP

jk
September 30, 2014 at 12:12 pm

You may receive more replies if you post directly to the CIDP Forum, not the main forum.

It is true that chronic (long, long time) nerve damage, attributable to Chronic CIDP, leads to irreversible muscle atrophy and wasting. At least it has been, and continues to be, true in my case.

Not only that, but there is a good likelihood that my treatment with Imuran, generic azathioprine, immune suppressant has permanently damaged my immune system. Specifically white blood cell and platelet production.

My opinion is that all CIDP patients would benefit from finding a fully qualified neuromuscular CIDP specialist when it comes to diagnosis and treatment.

Others, of course, have varying opinions.

contact the GBS_-CIDP foundation for help. http://www.gbs-cidp.org/home/about/contact-us/