Reply To: My, this forum has slowed down since I was active…

September 23, 2014 at 4:37 pm

This forum was once very active but has fallen prey to inactivity and spammers since the ‘foundation’ has focused its efforts (unfortunately) on its Facebook page. I will have nothing to do with FB due to its anti-privacy data-mining business model.

Yes, http://www.mdjunction.com/guillain-barre-syndrome appears to be a little more active. But the real deal these days is: http://www.livingwithcidp.org/forum You will find many of us ex-CIDP forum members there.

Too bad the foundation doesn’t support its forum anymore.