Reply To: Ability to Work with CIDP

July 27, 2014 at 10:25 pm

Hello Connie,

As has been pointed out, there is considerable variability in the disease course, the effect of treatment, and the work you already do. My CIDP was not particularly severe and my employer was accommodating, so the missed days were handled as regular sick days or I made up the work some other day. Once the treatment regime was stable, I worked full time and still do. My job is a lab job, so I don’t have to have great stamina or strength. If I had been a professional musician, I might well have had to give that up for another music job, at least for a couple of years.

As for treatment, get your diagnosis confirmed and then get treated. There is evidence that the long you go without treatment, the worse your long-term outcome will be. There are side effects to the treatments, to be sure, but unless your case is very mild, I suspect the side effects are better than the disease.