Reply To: Treating GBS in Middletown, NY (USA) – Just diagnosed

July 24, 2014 at 2:04 am

Is the doctor a neurologist? If he is, I would not assume at the outset that you need to change. See how it goes. There is nothing unusual about needing to assess after some period of treatment. My neurologist was assessing and keeping an open mind for a few weeks before settling on the diagnosis. One thing he must do is consider whether it should be classifies as CIDP instead of GBS. There are many other classifications of peripheral neuropathy as well. A neurologist is definitely needed to distinguish among them.

You might want to get the Parry and Steinberg book for yourself and your sister to better understand the disorder and how it is diagnosed and treated.