Reply To: New to CIDP I Think

Anonymous
May 26, 2014 at 3:26 pm

I had similar time line. It took 3 years for me to get a dx. After thinking it was ALS for a year they ruled it out and dx with cidp. It was a relief. At first I thought it was injuries from wrestling and football in college, I kept falling. Someone noticed I had a drop foot. I would workout like a maniac get in shape then get way layed by fatigue. I would get depressed and fat, and I thought I was just lazy. After finding a good neuro and fighting with my Insurance, I finally started IVIg. I felt a little wore out after the load dose but feel great now. I think once you get the right DX it will change your life. Once you know the problem you can begin to solve it, and that is a relief in itself.