Reply To: Child CIDP After months ivig does not work as well

May 5, 2014 at 6:44 pm

Charcot-Marie-Tooth disease, or CMT, is a group of inherited disorders that affect the peripheral nerves. CMT is usually confirmed through genetic testing: http://www.cmtausa.org/index.php?option=com_content&view=article&id=741&catid=10&Itemid=37

There are several posts about CMT on the forums that can be found via a search:
http://www.gbs-cidp.org/search/Charcot+marie+Tooth

It is good news that you are going to see Dr Dyck! He is well known, respected, and directs the Peripheral Nerve Research Laboratory at Mayo. He has a reputation for helping many difficult cases of PN disorders.

I have not read anything in clinical trial results that would suggest one type/brand of IVIg has consistently shown better results than that of another. IVIg did not help me much; I didn’t get good treatment results until I started Plasma Exchange (PE). PE made a huge difference for me. Dr Dyck will know what the best treatment is for your daughter after he does his diagnosis. I think your daughter is in very good hands now and will become better soon under Dr Dyck’s care.