Reply To: GBS relapses, residuals? When does it become CIDP?

May 5, 2014 at 2:51 pm

I don’t see what in particular you believe to be suggestive of CIDP. It is best not to fixate on a diagnosis which you have arrived at by yourself. Self-diagnosis is generallt wrong.

If your doctors are having trouble reaching a definitive diagnosis and prescribing effective treatment, then it is reasonable to seek more expert diagnosis elsewhere, but you should recognize that there is considerable variation in symptoms and effectiveness of treatments in neuropathies. Uncertainty is inherent, so your doctors may be doing an excellent job of meeting the standards of care, yet still leave you feeling unsatisfied.