Reply To: GBS relapses, residuals? When does it become CIDP?

April 28, 2014 at 1:13 am

When our autoimmune systems remember how to make antibodies that can attack “self”, we have a chronic form of Peripheral Neuropathy (PN). This is usually CIDP or one of its variants.

GBS, usually a single event unless RGBS is involved, comes-on over a 2-4 week period, peaks, and then improves over several months. Residuals can last for years. CIDP can occur again multiple times over the course of years. Most doctors agree that CIDP is indicated when there are 2nd and 3rd attacks similar to the original GBS attack. The severity of additional attacks varies by individual and CIDP symptoms differ greatly between those of us afflicted.

CIDP can usually be distinguished from GBS through the following tests:
• Diminished or absent deep tendon reflexes.
• A spinal tap, to analyze cerebrospinal fluid for elevated protein levels.
• Complete Blood and urine tests.

More info about CIDP can be found here:
https://www.google.com/url?q=http://www.gbs-cidp.org/wp-content/uploads/2012/01/CIDP.pdf&sa=U&ei=q5pdU82CPM-KyASkqYH4Bg&ved=0CC0QFjAB&usg=AFQjCNFhuv7MH6LWhdx_SiS03hEpyibeiA

Regarding the headaches, did you have IVIg treatments? Although rare, it is possible to get Aseptic Meningitis, a type of brain inflammation with symptoms of severe headache, stiff neck, fatigue, fever, sensitivity to light, painful eye movements, nausea, and vomiting … from IVIg. One can get this from other sources too. More info here: http://emedicine.medscape.com/article/1169489-overview