Reply To: GBS and non epileptic seizures

April 27, 2014 at 6:58 pm

Thanks for the detailed explanation, sounds like you have been through the ringer on this. My first thought is go to a “center of excellence”. I saw from your earlier post that you were at the Mayo Clinic in Rochester, it’s a very well recognized place for GBS/CIDP treatment, but not listed as a center of excellence. The closet one (approx 75 miles from Rochester) appears to be the University of Buffalo School of Medicine and Biomedical Sciences here:

Department of Neurology 100 High Street
Buffalo, NY 14202
Phone: 716-859-2024

Adult Care: Gil I Wolf, MD, Professor & Chair, Dept of Neurology, SUNY Buffalo
Nicholas J Silvestri

Your symptoms are uncommon and would be difficult to diagnose for even the most experienced doctors. If not Epilepsy, the most common trigger for seizures is insufficient blood oxygen, followed by post traumatic stress. You might want to look into Autoimmune Inflammatory Vasculitis as a possible cause (restricts blood flow). Some info can be found here: http://www.medicinenet.com/vasculitis/article.htm and
http://www.hopkinsmedicine.org/neurology_neurosurgery/specialty_areas/peripheral_nerve/conditions/vasculitic_neuropathy.html

Keep us posted on how you are doing.