Reply To: what else is there-other than physio

mj909, Sounds like you connected with a great pain center! May I ask which one?

I’m sorry to hear you may be having a recurrence, I hope you’re wrong. RGBS is extremely rare 4.5 years post GBS, CIDP is the more likely reason at this stage (assuming you ARE having a relapse of your GBS-like symptoms). More info about CIDP symptoms and recurrences can be found here:
• Older summary article for patients – http://ibmmyositis.com/cidp.htm
• Latest article about symptoms – http://emedicine.medscape.com/article/1172965-clinical#showall

My best wishes to you for good news and better pain management!