Reply To: what else is there-other than physio

April 8, 2014 at 1:57 am

My GBS/CIDP/MFS has not bee too painful except at onset in 2008. I have not needed anything for pain since 2009.

My wife has a tough case of very painful Fibromyalgia and has received good treatment from a pain center at a “GBS-CIDP center of excellence” here: http://www.cedars-sinai.edu/Patients/Programs-and-Services/Pain-Center/index.aspx

Have you tried Gabapentin (Neurontin) or Pregabalin (Lyrica) for your pain? Others on this forum have said Lyrica worked better than Neurontin for their GBS/CIDP. Some have reported relief using Amitriptyline (Elavil). Epidural injections or peripheral nerve blocks may be needed in some cases to help relieve sever pain. If you can, choose a pain center that has experience treating pain associated with peripheral neuropathy.