Reply To: Diagnosed at 12, Treated 20 years later, need help

March 18, 2014 at 6:15 pm

JK thanks for the info, I got a loading dose twice a month for the first 3 months and the rest of the months I got 72gms of Carimune once a month. I’m not sure if that is a lot or not. My MRI results showed abnormal enhancement of my optic nerve, which is probably optic neuritis. I will be seeing my dr this week. You would think the IVIG would have helped with the eye problem, but I see what you mean regarding people getting or not getting better with the ivig.