Reply To: Relapse vs Rehab

I wouldn’t wish what we all have on anyone, but wouldn’t you just like the folks at the insurance company to have this pain for one day then they would reconsider paying for our treatments. I’m starting on what appears to be another relapse. Was at my neuro today for my 3 month follow up and I’m up at 2 in the morning as I can’t sleep, severe headache, backache, burning tingling shooting pain in my feet. They will be cold one minute then hot the next and it is driving me crazy. I have started having these stabbing pains in the middle back of my head they only last a few seconds then it radiates down my neck and into my arm. They are going to redo my ENG again and my muscle neuron testing (which I absolutely hate) I prefer my spinal taps over the muscle neuron testing any day. I have had this for about 3 years now, diagnosed for about 2 years now, my spinal protein levels are through the roof. Spent a week in the hospital 6 months ago having 1000 mg a day of steroids pumped into me. Felt much better for several months, but it is all coming back. My doctor talked to me about going back in again to have this same treatment. He is leaving it up to me to decide. The way it is going tonight I would go in tomorrow.

I know I’m not alone when I get depressed with it all, I don’t sleep much at all anymore and that is a lot of the problem, I feel better up prowling around my house and moving. when I sit down or lay down I get worse and things just seem like they shut down and don’t want to work anymore. He prescribed me pain and sleeping pills but I don’t take them as I don’t want to get addicted to them, and with the gambepentin at such a high dose I think I take enough along with my other prescriptions.

Take care everyone we are not alone, God bless you all and hopefully they will find a cure to end this all for us soon.