Reply To: Anyone diagnosed with polyclonal hypergammaglobulinemia?

March 4, 2014 at 4:16 am

I get a lot of my drugs as generics from overseas as it saves me a great deal of money over the high cost of brand name drugs here in the US (even some that are covered by my insurance). If you’re interested, Sun Pharma (a large public corporation in India) makes a generic version of Metaxalone. They are only making the 400MG dose at this time. If you were to double your intake to 6 pills per day, the total cost would be about $135 per month. You can check it out here and decide: http://www.northdrugstore.com/buy-Skelaxin.html

Since my case of GBS/CIDP/MFS turned me into a quadriplegic in 10 days, I never had much sensation to warn me of the pending damage. I started getting numb from the waist up and down, and then I just stopped walking and fell one day. I went to the ER the next day where they diagnosed GBS and put me in ICU with countless IVIg infusions. I think I would welcome the feeling of a sprained ankle 😉

Regarding insurance, I would go the attorney route as a last resort. Effective in January, 2014, insurance companies can no longer use the pre-existing condition clause to deny coverage. You might find some of this discussion about insurance coverage options and denials helpful: http://www.gbs-cidp.org/topic/insurance-question-2

Get well so you CAN go play a sport!