Reply To: How long after onset did you begin to actually lose strength, not just weakness?

March 2, 2014 at 9:43 pm

GSLM, sorry to learn you still have not started treatments. Please read the following article for a current and comprehensive review of CIDP and related diseases, it was written by the renowned Dr R Lewis: http://www.uptodate.com/contents/chronic-inflammatory-demyelinating-polyneuropathy-etiology-clinical-features-and-diagnosis

The article contains a symptoms review, diagnostic and testing protocols that may be of special interest to you. The waiting game is no fun, especially when demyelination may be progressing, I hope you get treatments soon.