Reply To: How long after onset did you begin to actually lose strength, not just weakness?

March 2, 2014 at 5:44 am

A quick update, just had another EMG NCV, still within normal range. So frustrating! My balance is noticeably worse. Tremors, vibrations, muscle spasms and aches are all getting worse.

My neuro is very kind and promised to watch me through this ordeal until I get a diagnosis. He will see me every 6 weeks until something shows up in tests. If I have a quick decline I can call him any time. We discussed about a sensory motor antibodies panel and he will likely do that one.

He is very upfront and told me at first he also thought it was nothing serious, until I told him about the flu shot. He has seen too many vaccine injuries to ignore the connection. If it weren’t for the flu shot (thankfully I kept the record) he would still have thought it was all in my head. Well, small comfort.

I told him I would have given anything to go back in time and not to have the vaccine.