Reply To: How long after onset did you begin to actually lose strength, not just weakness?

My onset was staggered over 6-9 months, about 20 years ago. Spinal taps showed no to slightly elevated protien levels. We kept watching the trends. Then I weakened, initally drop foot, then to the point where doing stairs was darn near impossible. The next spinal showed elevated protien levels, thus a diagnosis was made, and confirmed at Mayo. Thanks to the late Dr. Stevens for sticking to my situation and getting me diagonsed.
Each of us reacts and responds differently to CIDP. You gotta find a way to get past the worries. For me I went to a GBS / C5DP support group meetings. Lisening to what was being said hurt, depressed me, but in the end was my method for understanding why I could go from an active golfer and downhill skier to someone reliant on AFO’s and crutches.
See my other posts for my ups and downs over the years!