Reply To: Methylprednisolone (Solumedrol) Experence

Have you considered having SCIg treatments? If you have adverse reactions to IVIg, SCIg could be a treatment you would tolerate much better and get the same benefits as from IVIg. You can read more about it here: http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2817783

Prednisone the pill – I took 60MG for about 18 months. It did help take my immune system off-line so it could no longer produce the bad lymphocytes (T-cells, B-cells, and NK cells) that no longer recognized “self” and damaged my Myelin and Axons. The PE removed the bad lymphocytes that were already released in my bloodstream. The IVIg treatments did little for me after I was on Prednisone.

I had many adverse reactions from taking the Prednisone (cataracts, shingles, fungal infections, thin skinned, more). The way I look at it, is that Prednisone is the lesser of the two evils when compared to CIDP. I would reluctantly take it again if I fell out of remission.

Are you taking Alpha Lapoic Acid? I’ve been taking 1200MG per day. There was a clinical trial last year using it to treat CIDP, the results and findings are not yet published. Other members here have reported good results with ALA. The clinical trial: http://clinicaltrials.gov/show/NCT00962429

Since CIDP is so individualized, everyone seems to respond differently to the various treatments and the outcome of the treatment will usually determine its duration of use. I hope your treatment plan works well for you and gets you back on your feet soon so you can rebuild that muscle mass!