Reply To: Problems with diagnosis

I’m inclined to agree that the second neurologist might not know what he’s doing here. These things are not cut-and-dried, and the neurologist should keep an open mind about the diagnosis. In my own case, even though my neurologist made an immediate diagnosis of GBS, he emphasized that it was tentative and that he was considering the other possibilities. Eventually, my diagnosis was changed to CIDP. Rarer variants are likely to be harder to diagnose because the neurologist may have no actual experience with them.